![]() |
|||||||
![]() Home About Us Medical Advisory Board News and Events Donate SWSC Canada in French Tom's Journal Thank You Ask the SWS Expert Ask the Eye Expert Ask the Laser Expert Ask the Medical Rehab Expert Ask the Developmental Specialsist Ask the SWS Nurse Sturge-Weber Syndrome SWS Pamphlet (pdf) PWS Treatment Guide (pdf) Related Conditions Vascular Birthmarks Research Find a Doctor SWSC Support Groups Join Glen's Gang (for kids) Special Stories Links Discussion Board Chat Room Newsletter Photo Gallery Contact Us Privacy Policy |
Welcome to the Vascular Birthmarks Foundation and Sturge-Weber Syndrome Community CanadaThe SWSCC provides information and support in English and French languages.
The Sturge-Weber Syndrome Community Canada (SWSCC) is the first website dedicated to the adults and children in Canada living with SWS, and their families and friends. The SWSCC hopes to promote interest within the Canadian medical community and public-at-large, while helping to improve issues regarding the treatment and diagnosis of SWS and its related symptoms. Each case of SWS is unique to the individual. The needs of a patient can vary greatly, depending on the symptoms and their severity. We hope the information provided on this site will prove beneficial to those seeking help and answers about SWS. Please contact the SWSCC if you need further help or information, or if you have any suggestions or comments. Meet LeiLani - Makeup consultant for VBF/SWSC Canada
She works closely with the Burn and Trauma Unit at Vancouver General, along with the Lupus society and Cancer patients. LeiLani also donates a percentage of product sales back to VBF/SWSC and other charitable foundations in Canada. Click here to learn more about LeiLani, the makeup,
and her charitable works. New ResearchLow-dose Aspirin Treatment for Sturge-Weber Syndrome (SWS) Survey Use of the Atkins diet for children with Sturge-Weber Syndrome REGISTER
NOW
|
||||||
![]() |
![]() |
Lisa and Greg Fortunoff, Mark of Beauty Gala Chairs and Sponsors |
Edward Strausman 2008 Conference Honoree |
We are very excited to announce that the 2008 Vascular Birthmarks Conference will be held in New York City on Saturday, November 15th. This year the conference is one full day only, with a fundraiser the evening before the conference. For the first time in VBF history, we are having the “Mark of Beauty” Gala to jointly benefit VBF and the VBI (Vascular Birthmarks Institute) at Beth Israel. Dr. Milton Waner and Dr. Alex Berenstein are the 2008 Co-Directors of the conference and Lisa and Gregory Fortunoff are the Friday evening Gala Chairs and Event Sponsors. The “Mark of Beauty” Gala will take place at the incredibly beautiful Hudson Theatre located at 145 West 44th Street from 7pm until 10 pm on Friday, November 14th. The conference will take place at the Beth Israel Union Square Auditorium, Phillips Ambulatory Care Center, at10 Union Square East between 14th and 15th Street on November 15th. It will start at 8:30am, with day care drop off and conference registration/check-in starting at 7:30am.
Alejandro
Berenstein, M.D., was named this year’s recipient of the VBF Physician
of the Year award for his outstanding and innovative techniques in treating
massive, complicated, and often life-threatening vascular malformations
and hemangiomas.
Dr. Berenstein is the Director of Beth Israel’s Hyman-Newman Institute for Neurology and Neurosurgery (INN) at Roosevelt Hospital in New York City, a state-of-the art facility for the diagnosis and treatment of neurological diseases and complicated vascular malformations and hemangiomas. He is a pioneer in the field of Interventional Neuroradiology, a specialty that utilizes minimally invasive procedures to treat conditions related to the vascular system of the brain, head, face, spine, and spinal cord.
Read More about Dr. Berenstein
The Sturge-Weber Syndrome Community, a branch of the Vascular Birthmarks Foundation, provides support and services freely and upon a volunteer basis for individuals and families living with SWS and vascular birthmarks, while sponsoring research and promoting physician education and awareness, as well as education of the public at large.
|
|
What if the SWS Community earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation (we are a branch of VBF) as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! www.goodsearch.com
Copyright © 2003-08 Sturge-Weber Syndrome Community. All Rights Reserved.
The SWSCC is a Chapter of the Sturge-Weber Syndrome Community (US), a Branch of the Vascular Birthmarks Foundation.
VBF is a fully approved not-for-profit.
Your
donations are tax deductible.
Federal Tax ID 16-1515227
Always seek the advice of a physician or other medical professional for diagnosis and treatment. The SWSC and/or VBF are not responsible for the content or accuracy of any information, advice or links on the site.

