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News and Events
Vascular Birthmarks Foundation to Host
“Mark of Beauty” Gala, Conference AND AUCTION
- Organization Works to Increase Awareness & Support of
Serious and Misunderstood Anomaly -
New York -- October 17, 2008 -- The Vascular Birthmarks Foundation (VBF) will be hosting its “Mark of Beauty” Gala and 2008 Vascular Birthmarks Conference on November 14-15, 2008, in Manhattan.
VBF is an organization dedicated to helping children and families affected by birthmarks, tumors, and syndromes receive proper diagnosis and treatment. Dr. Linda Rozell-Shannon founded VBF after her daughter was born with a hemangioma on her lower lip and she was unable to find information on treatment options.
According to Dr. Rozell-Shannon, vascular birthmarks are a largely unreported medical phenomenon that affects one in ten children born annually; with approximately 40,000 being so significant that they require the opinion of a specialist. Since insurance companies frequently deny treatment and because there are so few treatment centers or specialists, many children are left with a severe deformity, breathing difficulties, eating issues, blindness and, in some cases, death.
“During initial diagnosis, 90-95 percent of doctors will say that nothing can be done,” says Dr. Rozell-Shannon. (Shannon earned her PhD in order to help families affected by these lesions.) “There is an urgent need to raise awareness in parents, as well as doctors, that there are critical treatment options available.”
Concerned parents will have an opportunity to have their children examined and diagnosed at the 2008 Vascular Birthmarks Conference on November 15, beginning at 8:30 a.m. This program, which will take place in conjunction with the Vascular Birthmark Institute at Roosevelt, at Beth Israel’s Phillips Ambulatory Care Center branch (10 Union Square East in Manhattan), will also include lectures by the top specialists in the country on the latest information in the diagnosis and treatment of these lesions. (Reservations are required.)
The Mark of Beauty Gala will be held on Friday, November 14 from 7:00 p.m. to 10:00 p.m. at the Hudson Theatre in the Millennium Broadway Hotel New York, 145 West 44th Street in Manhattan. The event will feature a musical performance by stars of “Phantom of the Opera”, hors d’oeuvres and open bar, and a silent auction of celebrity items.
The exciting auction items include guitars signed by Miley Cyrus and the Jonas Brothers; a bat signed by Reggie Jackson; a 2007 New York Giants signed helmet; a Derek Jeter signed and framed New York Yankees jersey; a Sandy Koufax signed and framed L.A. Dodgers jersey; a Magic Johnson signed/encased basketball; a Joe Montana signed/encased 49ers helmet; a David Wright autographed bat; Yankees, Mets, Giants, Jets, Patriots and Red Sox memorabilia; and other many other collectibles.
People can also bid on a NASCAR driving experience; a Fighter Pilot for a Day experience; a trip for 4 to the 2009 Masters; a Sonoma Wine Extravaganza; and VIP tickets to many events.
For information on the clinic, gala, and auction – and to make reservations and obtain tickets – please visit www.birthmark.org or contact Basia Joyce at (518) 374-2062 or firstname.lastname@example.org.
VBF is also seeking corporate sponsors as well as donations of silent auction and gift bag items. (All donations are tax deductible.) Please contact Basia Joyce if you would like to contribute to this organization—which has had such a profoundly positive impact on more than 35,000 families worldwide.
About Vascular Birthmarks Foundation (VBF):
Vascular Birthmarks Foundation (VBF) is the leading not for profit in the world for families afflicted with vascular birthmarks, tumors or syndromes. It is an international organization that networks families to the appropriate medical professionals for evaluation and/or treatment and provides informational resources. VBF also sponsors physician education, research, and programs that promote acceptance for living with a birthmark. Programs include Babies with Birthmarks, Orphans with Birthmarks, and VBF Day of Awareness.
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Use of the Atkins diet for children with Sturge-Weber Syndrome
The Sturge-Weber Syndrome Community, a branch of the Vascular Birthmarks Foundation, provides support and services freely and upon a volunteer basis for individuals and families living with SWS and vascular birthmarks, while sponsoring research and promoting physician education and awareness, as well as education of the public at large.
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VBF is a fully approved not-for-profit.
donations are tax deductible.
Always seek the advice of a physician or other medical professional for diagnosis and treatment. The SWSC and/or VBF are not responsible for the content or accuracy of any information, advice or links on the site.