Medical Advisory Board
News and Events
SWSC Canada in French
Ask the SWS Expert
Ask the Eye Expert
Ask the Laser Expert
Ask the Medical Rehab Expert
Ask the Developmental Specialsist
Ask the SWS Nurse
SWS Pamphlet (pdf)
PWS Treatment Guide (pdf)
Find a Doctor
SWSC Support Groups
Join Glen's Gang (for kids)
Use of the Atkins diet for children with Sturge-Weber Syndrome
Principal Investigator: Eric Kossoff, MD
You are invited to join a study enrolling children ages 2-18, with proven Sturge-Weber syndrome on an MRI, for a study of the Hopkins modified Atkins diet for treating intractable seizures. Children must have at least one seizure every month and have tried at least 2 anticonvulsant medications to enroll. The study involves 3 visits to Johns Hopkins over 6 months, which must be covered by the parent or insurance. Blood and urine studies will be obtained at the first and last visits.
For more information, contact Dr. Eric Kossoff at 410-614-6054 or firstname.lastname@example.org
Other Vascular Birthmark Related Research:
You must meet the following criteria to be in the study:
All information is strictly confidential. Your answers will be sent to the scoring coordinator anonamously (without your identity disclosed).
Elissa Uretsky- Rifkin, M.Ed. CMHC
If you are interested in finding out when new research becomes available, please check back for updates
Copyright © 2003-10 Sturge-Weber Syndrome Community. All Rights Reserved.
VBF is a fully approved not-for-profit.
donations are tax deductible.
Always seek the advice of a physician or other medical professional for diagnosis and treatment. The SWSC and/or VBF are not responsible for the content or accuracy of any information, advice or links on the site.